Showing posts with label Ehlers Danlos Syndrome. Show all posts
Showing posts with label Ehlers Danlos Syndrome. Show all posts

Sunday, June 9, 2024

Rarest of Thank You's...

For my long time friend, Renee...  I have a rare genetic connective tissue disorder.  The mascot for my condition is the Zebra.  The last day of February of every year is World Rare Disease Day, to bring awareness to rare conditions.  She made me the most beautiful hand (and I mean literally, with her hands) crocheted black and white blanket in honor of World Rare Disease Day.  When I opened it, I cried...it was such an incredibly kind and thoughtful gift.  I will cherish it for years to come!  Thank you Renee!!!
Rarest of Thank You's...
On trend with my other posts from today, this too was made using the current at the time MFTWSC689.  I used a black and white theme since Zebra's are black and white.  My Favorite Things Rose with Overlay, Layered Leaves, and Essential Stitched Sentiment die-namics.  Big Greetings for the sentiment, white craft ink, then embossed with with embossing powder.  Stampin' Up Sizzix folder.

Rarest of Thank You's...
This was a total surprise!!!

The blanket is just beautiful!

Thank you for taking a peek at my blog.

 

Sunday, August 28, 2022

You Color Me Happy Jennifer...

A thank you for a dear friend of mine who sent me a care package when I was having an Ehlers Danlos Syndrome flare up.  I swear I have the sweetest friends ever!!!
You Color Me Happy Jennifer...
I used Color Blast and Stitched Cloud Edges die-namics.  Sentiment from the My Favorite Things Good Vibes Only stamp set.

You Color Me Happy Jennifer...
She definitely knows how to make me laugh and cry!

Thank you for stopping by!
 

Zebra Strong...

I received the most amazing RAK in the mail...a Zebra T-Shirt done in orange (my favorite color).  For those that don't know, I have a rare genetic connective tissue disorder called Ehlers Danlos Syndrome (Classical/Hypermoble Type).  Basically I have a faulty collagen system.  The mascot for EDS is the Zebra, so an awesome friend of mine had this shirt made for me (in my favorite color) and sent it to me.  Talk about bringing me to tears upon opening it!
Zebra Strong...
I stamped my zebra in Memento ink, then used blending brushes to color it.  I fussy cut it and mounted it on a white base layer that was run through a cuttlebug folder.  I made a black circle frame using two circles run through the die cutter.  Added the sentiment from My Favorite Things Big Greetings set.

Zebra Strong...
My awesome shirt!!!

Thank you for having a look!
 

Tuesday, December 25, 2018

World Rare Disease Day...

My sweet dear friend Shirey put together a World Rare Disease Day Ride for me to raise awareness for Ehlers Danlos Syndrome.  Of course the one day of the year where we live we had the worst weather...snow, sleet, rain and were unable to go cycling.  We still got together for breakfast and I spoke a little about Ehlers Danlos Syndrome.  Shirey made the day so special for me, going above and beyond what I ever expected.  Bicycle Ranch Tucson was kind enough to let Shirey host the event at their store.  Thank you Steve!

Anyhow, I made these cards as a raffle prize .

World Rare Disease Day...

World Rare Disease Day...

World Rare Disease Day...
Carolyn, Shirey, Me, Tami, Coach Robin

Have a Merry Christmas!