Rarest of Thank You's...

For my long time friend, Renee...  I have a rare genetic connective tissue disorder.  The mascot for my condition is the Zebra.  The last day of February of every year is World Rare Disease Day, to bring awareness to rare conditions.  She made me the most beautiful hand (and I mean literally, with her hands) crocheted black and white blanket in honor of World Rare Disease Day.  When I opened it, I cried...it was such an incredibly kind and thoughtful gift.  I will cherish it for years to come!  Thank you Renee!!!

On trend with my other posts from today, this too was made using the current at the time MFTWSC689.  I used a black and white theme since Zebra's are black and white.  My Favorite Things Rose with Overlay, Layered Leaves, and Essential Stitched Sentiment die-namics.  Big Greetings for the sentiment, white craft ink, then embossed with with embossing powder.  Stampin' Up Sizzix folder.

This was a total surprise!!!

The blanket is just beautiful!

Thank you for taking a peek at my blog.

 

World Rare Disease Day...

Today is World Rare Disease Day!  I have a rare genetic connective tissue disorder called Ehlers Danlos Syndrome.  Every year for the last 11 years I've been raising awareness about my condition by posting about it on this day on Facebook.  This year I thought I'd do something a little different since I now know two other people with my condition.  I wanted to make my two fellow Zebra's, Kirsten and Amy (all the way across the pond in Wales) a card to wish them a "Happy" and Pain-Free World Rare Disease Day. 

When My Favorite Things came out with the Zippy Zebras stamp set I knew I had to have it!!!  I started out sponging Stampin' Ups Basic Gray ink with the Small Brick Wall stencil from MFT on Neenah.  I stamped my Zebra image with memento ink on Neenah then used the coordinating die-namics to die cut it.  I used Copics to color it and pop dots to mount my image.  Next I used the Twice the Hugs die-namics in Real Red, highlighting it with a white gel pen.  I mounted my layer on a black card base.   

Wishing all the Zebra's out there a Pain-Free World Rare Disease Day!
Share your support by wearing your black and white stripes today.
Have a wonderful rest of your weekend!

 

World Rare Disease Day...

My sweet dear friend Shirey put together a World Rare Disease Day Ride for me to raise awareness for Ehlers Danlos Syndrome.  Of course the one day of the year where we live we had the worst weather...snow, sleet, rain and were unable to go cycling.  We still got together for breakfast and I spoke a little about Ehlers Danlos Syndrome.  Shirey made the day so special for me, going above and beyond what I ever expected.  Bicycle Ranch Tucson was kind enough to let Shirey host the event at their store.  Thank you Steve!

Anyhow, I made these cards as a raffle prize .

Carolyn, Shirey, Me, Tami, Coach Robin

Have a Merry Christmas!