Tuesday, December 25, 2018

World Rare Disease Day...

My sweet dear friend Shirey put together a World Rare Disease Day Ride for me to raise awareness for Ehlers Danlos Syndrome.  Of course the one day of the year where we live we had the worst weather...snow, sleet, rain and were unable to go cycling.  We still got together for breakfast and I spoke a little about Ehlers Danlos Syndrome.  Shirey made the day so special for me, going above and beyond what I ever expected.  Bicycle Ranch Tucson was kind enough to let Shirey host the event at their store.  Thank you Steve!

Anyhow, I made these cards as a raffle prize .

World Rare Disease Day...

World Rare Disease Day...

World Rare Disease Day...
Carolyn, Shirey, Me, Tami, Coach Robin

Have a Merry Christmas!

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